Stop the clock, open the window cover the mirror

Today has been hard

The lady I have been nursing for almost a year as her soul midwife has possibly only a few days left.

She and I have over the last year become close friends and I know had we met under different circumstances we would have been good friends.

We have so much in common spiritual beliefs, sense of humour and we are both strong minded and stubborn.

Our grand daughters have been friends since baby school they are now 13

Tamika and Jayden both nannys girls.

It was through Jadens Mum I met Karen .

She had told her about my work as a soul midwife and our cancer retreat

I think you will get on she said and passed me her phone number.

She was right .

Karen was streight talking a good looking very proud women. Oh and did I mention stubborn in a very fabulous way.

She had lost her husband two years previously to cancer she had been his princess we sat and chatted about her journey.

At the mention of his name there was always a smile and a story.

He had been her Knight in shining armour

She was determined to stay as well as possible for as long as she could for her boys.

Before I knew it two hours had flown by.

So shall I come back next week? I asked .

Yes she smiled I’d like that and tell Lisa thanks for pointing you my direction.

Just before I got into my car she called me back.

The cancer she said.

Yes?

I told them I don’t want to know how long I have.

What would you do?

I don’t think I’d want to know either I said.

But it’s completely your choice

Someone giving you a time scale on life.

No one really knows.

I’d rather say I’ll die when its my time and I’m ready.

I like that she laughed.

See you next week.

So I’d call in we would chat about anything and everything.

I’d do some reflexology or massage.

We wrote funeral plans and lists.

We put everything in order.

That’s a massive part of my job

It gives back some control and reassures my patients that when the time comes

All their wishes will be honoured

I am a celebrant I trained so that I can confidently offer funeral and wedding services too.

So we plan everything nothing is left to chance

We write wills.

Then when all the serious stuff is sorted

We get on with living.

Quality of life.

Being comfortable.

Getting out and about

Shopping , for coffee.

I’ve even had one lady request we go on a roller coater

Twice! She loved it.

I didn’t

You get the picture.

I spent this evening making memory jewelry from karen’s finger print and her grand daughter jaydens.

It’s solid silver

So that Karen will always be with her.

Karen has been my friend even if only for a short time.

Her grand daughter has been amazing for a thirteen year old.

She has sat chatting with her in the hospice gone out with her on shopping trips.

It’s a joy to see Karen’s face light up when she sees jayden come in.

She told me she isn’t afraid of dying just afraid of not being around for Jayden.

Last Wednesday was her last good day we spent it together laughing drinking tea and watching T.V I put he in bed before I left and tucked her in.

As I kissed her head she caught hold of my hand.

You’ve been my nurse and my friend she said smiling at me I love you Joolz and I want to thank you.

No thanks needed I kissed he head again try to get some sleep and I’ll see you in the morning

Night mam she joked.

I walked out into cold October air and a tear ran down my cheek.

Let it be peaceful I asked the universe.

The next morning I walked into her room towel over my arm to wash her hair how did you sleep I asked.

She looked at me blankly.

Talking about painting the ceiling and how wiccans and dwarfs were playing rugby for Wales.

My heart sank.

Last stages of liver cancer often present a dementia like confusion

I sat by her holding her hand.

joolz it’s you! I’m sorry I can’t go shopping today.

I kissed her forehead.

That’s fine I reassured her the weather is awful let’s rest today we can go next week.

I called the doctor to her as I rang her family.

Things changed quickly.

36hrs later I received that call can you come back to the hospice Joolz it’s time.

My clothes are ready I’m dressed in minutes. Kiss my husband goodbye and step out into the cold night air.

As I’m walking to the car I’m ringing her son’s to tell the the news as I then drive to pick up her Jay grand daughter.

All of this has been planned.

Everyone knows it isn’t set in stone you have no idea how you will feel.

when ‘that’ phone call comes.

As I pull up outside the house jay comes out the image of her nan in younger years

As she gets in the car I ask ar you sure you want to come?

She’s stubborn just like her nan I know the answer

She nods and we head to the Hospice.

The roads are empty she looks at me and asks.

“Joolz what will it be like?”

How do you answer that

Shes 13 her nanny’s girl.

She’s sleeping I say, hoping I can find the right words.

She can still hear you. Talk to her tell her your there.

Hold her hand.

If at any point you need to leave the room that’s okay.

However you want to do this it’s okay.

She nods and we pull into the car park.

She is lying in bed much the same as when I left her last night

Breathing heavier I kiss her gently on her forehead

Ive brought your girl I tell her taking her hands from under the blanket

I sit her son’s beside her jay sits holding her hand gently like precious porcelain.

Im here nan she says.

I remember her as a cheeky four year old no teeth full of mischief slurping jelly at my granddaughters birthday party.

When did she bloom into this beautiful caring strong young.

My heart breaks for her.

I tell them all I’ll just be outside for ten mins to give them some time to say the things they need to.say.

Tell her anything you want I say. I’m right outside the door.

As I come back in I stand back and take in the picture before me.

Hands holding hands words softly spoken a room filled with love.

I sit beside Jay.

We silently watch her breathing slow her youngest son looks at me and asks is she going .

I nod

I love you mam he sobs .

It’s okay my friend You can go now, Leon is waiting.

At 5.45 she leaves us peacefully.

This passing was beautiful. A family holding vigil no pain as she quietly stepped from the earth plane to spirit plane .

I can’t help but feel my world will be a little less bright without her in it.

I kiss her gently and whisper safe journey home my beautiful friend.

As I picture her husbands joy at having her back in his arms.

His princess.

Goddess bless you Karen ❤️

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Mental Health Crisis

Psychosis, psychics, self harm, bi polar, scizophrenia , personality disorder,
Melting pot acute ward where there is no pecking order.
Underpaid over worked staff juggle back to back cefn coed hospital disorder
Meds trolleys doles out pills but they can’t numb the pain
Discharge sheets and promises of Oh! you won’t see me on this ward again.
Visitors checked for meow meow speed and weed
For untreated drug habits that the valium can’t feed
Drinks machine spews watery hot chocolate to visiting kids
Mam will be home soon
Mental health part of a broken system no way to live.
Talking therapies please.. your having a joke
ask your consultant again
But his eyes tell a tale of a NHS beyond broke
We are luckier than some views over Swansea bay
Other are shipping off to bridgend
There has to be another way
Cefn coed the big hotel on the hill
Looking over Swansea
Big red bricked Welsh dragon watching out for the vunerable bekoning them inside it’s walls there are beds to fill.

Unexpected mam & Dad

It’s six am I’ve done three loads of washing, emptied the dishwasher fed the cats and the geese put washing on the line lost my cup of tea twice

The September sun is shinning it’s a beautiful day.

I’m picking up my mother and father in law at nine taking them to hospital father in law is being admitted nothing serious.
Normal?
No.
Wonderful yes.
You see I joke with my hubby I tell him he got me to come back to Wales under false pretenses.
He promised me a family a Mam and Dad .
That was fourteen years ago.
His mother is four foot f@@k all and scared the shit out of me.
No one was good enough for her boys. Typically Welsh mammy.

They should write mammy on the police cars in Wales there would be no trouble!
So back to my story some English woman was never going to cut it for Nancy’s boy.

I tried everything. But she was vile she was cutting critical so I left her to it.
Always encouraged my hubby to call.
Then nine months ago his father became I’ll and suddenly she changed!
She refares to me as her daughter. I was slightly scared wondering how long it would last.
But here we are.
The universe listens

So Nancy is alot older so am I .
But we are family
I’m taking Mam and Dad to hospital.
Saying something so simple makes me so happy.
Now where are my car keys 😊

Four little words

I can’t remember that last time I cried for myself, I’ve cried for other people but never for me, apart from when my granddaughter Tamika was born. Happiness of course. But before that I’m sure it was back in the dark ages before I came to Wales.
You see I’m always positive its just the way I am. Facebook status life in general I really do believe that there is always something positive in every situation. You just have to look.
I’ve been off work now since March after a sudden and completely unexpected collapse midnight on my birthday. I’d been walking my dog and cat, who by the way thinks he’s a dog down the canal for their walk.
I can’t really discribe what happened I just knew there was something very wrong.
Rang my hubby to come and get saffie as she couldn’t walk too fast.
Then hurried eight doors up to out cottage on the canal bank.
I made it too the bathroom where I got the worsed pain ever like being suddenly hit in centre of my he’d with a pick axe.
I thought this is it I’m going to die.
Sounds dramatic but I’m really not.
I really was that scared.
I lost my speech and couldn’t feel my left side.
Jeff came in picked me up, carried me into the car and within thirty mins I was in emergency room at Morriston hospital.
Pretty scary stuff as I never went to my G.P never took tablets, even had my children at home
So after being admitted I had lumber puncture, c.a.t scans, MRI, neurologists blood tests and transfared to three different wards and subjected to worsed hospital food a vegan could imagine
I was eventually discharged with a letter for my G.P a months sick note and a promise of a neurologist appointment within the month.
I was so relieved to leave still couldn’t walk so dragged my still numb left leg down the corridor ignoring Jeff’s plea’s to get in a wheel chair. (I may have swore at him)
I was and still am determined to sort myself out.
I admit thinking about it this was the universe kicking me up the arse to slow down
I had with hind sight missed a few warning signs vertigo, extremely painful joints, brain fog, pins and needles in my fingers and a weird sensation sort of crawling or dripping water under my skin on my back.
But as a lot of us do I blamed it on work..
Wrestling with wheelchair, or menopause, because let’s face it I’m 53 most things are down to the bloody menopause! Oh and the bed! I’ve had three new mattresses.
But now six months later still off work I’m not so sure.
I’m still waiting for my appointment.
I’ve agreed to take gabapentin and they do help slightly but there are mornings when I really struggle to get up and get downstairs.
The pain is horrendous.
My fingers are stiff, shoulders, hips and most other joints are beyond painful.the numbness is something else.
I use cannabis oil at night as otherwise I find lying on either side on my shoulders unbarable.
I accept it is something neurological I’m still having energy healing, relfexology and I’m thinking of taking up yoga anything to keep my muscles moving.
I will get better.
My worry is my job, I’m down to half pay, and if I’m honest I know I can’t go back and do the job I did. The occupational health doctor confirmed this last week. It’s one thing knowing it but having someone else tell you is different.
I have now gone into panic mode.
Shall I open a vegan cafe? I could do dog walking, pop up restaurant?
I have never NOT worked. I’ve always supported my family.
This is my weak link. I am still positive about things. I really am.
But I’m scared. What is it your trying to tell me universe I really am listening!
This morning lying in bed beside my hubby jeff sun streaming through the window his big arms around my I lay there head on his chest listening to his heart.
He talked about building a healing & therapies room we had planned for me to work from just behind the cottage.
‘I don’t want you doing it all yourself I said. Digging foundations when the weather goes cold.’ .
He tightens his arms around me and tells me to stop worrying. ‘This isn’t like you.’ He’s right it isn’t
‘we lead a very simple life I don’t want posh holidays never had credit cards I wear charity shop clothes happily. But keeping the car on the road paying bills and food in the cupbords are important. So yes the first time me not being independent paying my way is scary.

Shhhh he says.. ‘I’ll look after you.’
And that was it. Catalyst.
Four words that broke the dam. I cried I don’t think anyone has ever said that to me before.
‘Ill look after you’
I’ve looked after myself from being a kid anyway and everyway. .

So I know I’ll get better.
Maybe I won’t be able to stay in my current job but I’ll find a way to do something else I love.
Maybe that will be working from home in my new Healing room who knows what the universe has in store but I’m listening.
But I do know those four little words were said at just the right time, right place by just the right person. I love him my beautiful shy Welshman.
I’ll look after him too

Cefn coed Hospital

Psychosis, psychics, self harm, bi polar, scizophrinia , personality disorder,
Acute ward, melting pot where there is no pecking order.
Underpaid, over worked staff juggle back to back cefn coed hospital disorder
Meds trolley doles out pills but they can’t numb the pain
Discharge sheets and promises of, Oh!nurse you won’t see me on this ward again.
Visitors checked for miow miow speed and weed
For untreated drug habits that the valluum just can’t feed
Drinks machine spews watery hot chocolate to visiting kids
Mam will be home soon
Mental health she’s part of a broken system no way to live.
Talking therapies please.. your having a joke
ask your consultant again
But his eyes tell a tale of a NHS beyond broke
We are luckier than some views over Swansea bay
Other are shipping off to brigend
There has to be another way
Cefn coed the big hotel on the hill
Big red bricked Welsh dragon watching out for the vunerable bekoning to them for it has beds to fill